PSALM 25:5 GUIDE ME IN YOUR TRUTH AND TEACH ME, FOR YOU ARE GOD MY SAVIOR, AND MY HOPE IS IN YOU ALL DAY LONG
As many of you remember it was just 1 week and 1 day ago that we took 13 yr. old Maysie out to the Mayo Clinic for evaluation.
Allow me to share a little bit about her… Up until the age of 10, Maysie was a normal sweet little 5th grade girl who loved lip gloss and wearing high heels around the house. It was in March of 2013 that she suffered a serious seizure leading to her hospitalization. It was during this time that she was placed into a medically induced coma. In hope of eliminating these continuous seizures the difficult decision was made to remove the right side of her brain. Unfortunately the seizures continued and began to affect the left side of her brain as well. Since then she has been totally ventilator dependant and bedridden.
Again with hope that there was more that could be done for Maysie, Grace on Wings was asked to transport her and her mom Stephanie to Rochester.
Maysie is still a beautiful little girl with these brilliant baby blue eyes and long brown hair. Her mom, Stephanie has not left her side and continues to care for her meticulously at their home. Maysie has an older brother who is 22 yrs. old and a younger sister of 20 months. We arrive at Maysie’s bedside and Stephanie has her dressed, her hair braided and ready to go. We carefully transfer Maysie from her hospital bed to our cot along with her ventilator and make the trip to the airport via the ambulance.
After we pray we again very carefully place her on board Abe and begin our flight back to her home.
We learn from Stephanie that unfortunately there is nothing that Mayo can do for Maysie, however she is thankful for the opportunity to go, otherwise she would still be wondering. She is tired and they just want to get home now. Maysie tolerated the flight very well it seemed to stimulate her as she kept her eyes open nearly the entire time. We thought that maybe it may have something to do with the vibration of the plane. I spent a lot of time talking with Stephanie on the flight home. She loves to bake and hike. She is able to work as a hostess for a few hours on Sundays. It is evident that her children are her life. I did not hear her complain one time about how things have changed in her life. This is now her normal.
We landed safely in Pontiac and our ambulance crew is waiting. What a blessing it is Andy and Dominica who will be helping with the transport. They were the two whom had done the first transport and had insisted that they do the return. They had made special arrangements to do so. We all climb into the back of the ambulance and Dominica sits at Maysie’s head. During the ride (which can be quite bumpy) she holds Maysie’s head and gently whispers, “it will be all right baby girl, I’ve got you.” It was such a sweet picture and I could tell that there was a very deep reason for her kindness, so I began to ask her about her life. She herself has 6 siblings, she is a busy wife, mom and a grandmother. It was about 2 yrs. ago that she lost her 4 yr. old grandson (he would be 6 yrs. old now) as his older sister and he somehow got out of their home in the middle of the night.
They lived on a very busy street and wanted to go across to the gas station for a slurppie when he was struck by a car and killed instantly. There it was…she could relate. It was undeniable that she and Andy loved this family as they have had the pleasure of transporting and caring for them many times in the past. God has definitely brought them into the life of Maysie and her family to be their angels here on earth. We arrive at Maysie’s home and with the help of everyone Maysie is gently carried back to her own bedroom and placed into her own bed.
With the exception of all the medical equipment that she now relies on, her room looks like that of a typical teen girl, complete with posters of pop singers on her wall. Stephanie removes her from the portable vent to the one that sits by her bed and like clockwork and without hesitation goes through the steps of making sure everything is set and connected properly. You can tell she has done this many times. She softly rubs Maysie’s forehead and says, “welcome back home.” We all gathered in prayer laying hands on Maysie then we walked down the hallway with Stephanie. We knew that she needed some rest so we thanked her for allowing us to be a part of their journey and then made our trip back to the airport.
Please continue to keep Maysie, Stephanie and this family in your prayers. You can send them a message of encouragement on their facebook site “daisies for maysie”.
PSALM 39:7 “BUT NOW, LORD, WHAT DO I LOOK FOR? MY HOPE IS IN YOU.
Thank you to Hal, Chet, John, and Chris for sharing in this mission May God’s grace and peace be with each of you.
Shelli Engle RN